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Coping with Down's Syndrome Overcoming Common Problems

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Manufacturer: Sheldon Press
Author: Fiona Marshall
Binding: Paperback
Publication Date: 2005-02-01
Publisher: Sheldon Press
Label: Sheldon Press
Number Of Pages: 116

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Editorial Review
In the last few decades life for children with Downs Syndrome has changed for the better. Where once they were marginalized, they are now seen as individuals and are integrated into society. There is a growing realization that Downs children have enormous potential, and their future is brighter than ever before. Fiona Marshall explains Downs syndrome, its causes, and how it is diagnosed. Here you fill find sound, common-sense information on the health issues that your child may face and what to expect as they develop and grow. Included are case studies showing how other children and parents have coped, and lists of organizations that can provide resources, help and support.
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Customer Reviews

There are many books for new parents better than this one!

2006-07-27
Honestly, I have not read this book, though I have read all of the excerpts available through Amazon. I am a genetic counselor and would never give this book to a family, but I noticed that some people who look at "Babies with Down Syndrome: A New Parents' Guide" bought this book instead, so I wanted to check it out. From the title, I wasn't expecting much as the correct name is "Down syndrome" rather than "Down's syndrome." Diagnoses are named to honor the people who first described them--but that doesn't mean that they own them!

In the short pieces of the book I did read, besides the somewhat callous language, I noted another "naming" type problem as well as a very inaccurate piece of information. First, recurrence risks are given for the chances of having another "Down's syndrome baby"--but parents had a baby (the important piece) that has Down syndrome. People first language is necessary and not using it is insulting. Second, the book makes mention that there are different types of genetic changes that cause Down syndrome. That is true, but much of the information provided is incorrect. For example, the author states that 1/3 of individuals with Down syndrome have a translocation. This is not true--this actually happens less than 5% of the time.

Please look for other options than this book. Again, "Babies with Down Syndrome: A New Parents' Guide" is an excellent resource. If it contains more information than you want to know, don't read the other parts. Maybe you'll want to know more about them in the future, maybe you'll want someone to rip those pages out so you don't have to worry about them! The important thing is to get accurate information and take care of your new baby!